Not all disabilities are visible…

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So lets be honest, although most of us probably don’t want to admit it, being judgemental seems to be human nature. I have judged people and I have been judged but we don’t know everyone’s story and it’s a sad trait to have. I guess a lot of it is to do with stereotyping. There are so many stereotypes out there and these seem to get passed from generation to generation and it really needs to stop.
I went to a hospital appointment recently with my carer and was waiting to park in the disabled bay. I’m a 25 year old woman with invisible disabilities and I was judged by two different people whilst waiting. A gentleman who was coming out of the bay wound his window down and made a hand gesture to call me a “w*nker” and an elderly woman who must have wanted the space called me a “silly cow” and waved her blue badge at me so I waved mine back at her! A similar thing happened to my friend recently. She is 18 and she was waiting for a disabled bay and an elderly woman wound her window down and told her that those bays were reserved for disabled people so she showed her badge and the lady then said that they were for “elderly people” and that she should go and park elsewhere.
Think about it. Have you been judged? Have you judged someone? We don’t know everyone’s individual story.
The really thin girl you assumed was anorexic may be desperately trying to put on weight or could be fighting an invisible illness that makes gaining weight difficult for her.
The guy you saw on crutches struggling to walk last week who is walking today may be suffering with a condition that varies massively, it doesn’t mean he was faking it.
Please try not to stare at the young girl in the wheelchair trying to figure out what is wrong with her.
The guy who has used the disabled toilet but looks “normal” could be suffering with IBD.
Not all disabilities are visible. Not all disabilities are the same. Think before you judge.

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Love & hugs,
Charlie xoxo

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EDS Fact: Number 82

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EDS82

 

Awareness accessories!

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I decided to make some bracelets and ribbons to try and spread some awareness of invisible illnesses.
There are 3 styles of ribbon broaches and 2 styles of bracelets.
Ribbons are £2
If you buy 4 you get a 5th one free!
Beaded bracelets are £3
Wool bracelets are £1.50
If you would like to order any then please comment or message me.
Styles may vary slightly from the pictures.
Any donations will help towards my medical costs.
Payments via PayPal
www.gofundme.com/charlieharris

Ehlers-Danlos Syndrome Awareness. Vascular EDS.

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Ehlers-Danlos Syndrome Awareness. Vascular EDS.
This video has a short explanation of what Vascular EDS is, the signs and symptoms and the causes. Please feel free to share to raise awareness of VEDS!

Thanks for watching, Charlie x

Ehlers Danlos Syndrome Awareness

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May is Ehlers-Danlos Syndrome month and I am going to be trying to upload as many EDS awareness videos as possible. Please like, subscribe and share to get EDS on everyone’s lips!

Thanks for watching, Charlie x

Ehlers-Danlos Syndrome in the media.

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Today I came across an article in Reveal magazine about an inspiration young lady called Keeley, who I am friends with on Facebook, who also has Ehlers-Danlos syndrome.
Keeley talks about the realness of EDS and the fact that just the slightest of movements is enough to cause dislocations. I can relate to what Keeley is saying and just the other night my partner gave me hug and felt my shoulder come out of place. He was a bit freaked out as he has never felt it happen before. Also like Keeley, it was Facebook support groups that introduced me to Ehlers-Danlos syndrome and pushed me further to seek help when my local hospital couldn’t explain my illness.
Please read and share Keeley’s article to help raise awareness of Ehlers-Danlos syndrome and the impact it can have on daily life. Well done Keeley, you are an inspiration.
Charlie x

http://www.reveal.co.uk/real-life-stories/news/a620565/ive-dislocated-every-bone-in-my-body.html