Not all disabilities are visible…

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So lets be honest, although most of us probably don’t want to admit it, being judgemental seems to be human nature. I have judged people and I have been judged but we don’t know everyone’s story and it’s a sad trait to have. I guess a lot of it is to do with stereotyping. There are so many stereotypes out there and these seem to get passed from generation to generation and it really needs to stop.
I went to a hospital appointment recently with my carer and was waiting to park in the disabled bay. I’m a 25 year old woman with invisible disabilities and I was judged by two different people whilst waiting. A gentleman who was coming out of the bay wound his window down and made a hand gesture to call me a “w*nker” and an elderly woman who must have wanted the space called me a “silly cow” and waved her blue badge at me so I waved mine back at her! A similar thing happened to my friend recently. She is 18 and she was waiting for a disabled bay and an elderly woman wound her window down and told her that those bays were reserved for disabled people so she showed her badge and the lady then said that they were for “elderly people” and that she should go and park elsewhere.
Think about it. Have you been judged? Have you judged someone? We don’t know everyone’s individual story.
The really thin girl you assumed was anorexic may be desperately trying to put on weight or could be fighting an invisible illness that makes gaining weight difficult for her.
The guy you saw on crutches struggling to walk last week who is walking today may be suffering with a condition that varies massively, it doesn’t mean he was faking it.
Please try not to stare at the young girl in the wheelchair trying to figure out what is wrong with her.
The guy who has used the disabled toilet but looks “normal” could be suffering with IBD.
Not all disabilities are visible. Not all disabilities are the same. Think before you judge.

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Love & hugs,
Charlie xoxo

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EDS Fact: Number 7

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EDS Fact: Number 7

EDS7

Why not share to raise awareness?

Charlie x

The Dark Side Of EDS

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Professor Rodney Grahame ‘The dark side of EDS’

Professor Grahame said himself that it is “the most neglected condition in the history of medicine”.

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What is small intestinal bacterial overgrowth (SIBO)?

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The small intestine (small bowel) is the part of your digestive tract that connects your stomach to your colon (large bowel). In my case this isn’t right as I had my colon removed and my small intestine is now joined to my rectum. The small intestine digests and absorbs about 90% of the nutrients from the food we eat. The whole of our digestive tract contains bacteria and small intestinal bacterial overgrowth (SIBO) refers to a condition in which abnormally large numbers of bacteria are present in the small intestine. Small intestine bacterial overgrowth is often associated with other underlying illnesses and some of the symptoms include:

  • indigestion
  • diarrhoea
  • abdominal pain
  • bloating
  • excess wind
  • constipation

But how are the symptoms caused? As bacteria is digested in the intestine it creates gas. The gas can then build up in the abdomen causing abdominal bloating or distension. The distension can then cause pain and the increased amount of gas causes wind. The bacteria are then thought to convert food into substances that are irritating or toxic to the cells of the inner lining of the small intestine and colon, which then results in diarrhoea. There is also some evidence that the production of methane gas by the bacteria may cause constipation. When there is a large amount of bacteria in the large intestine it can compete with the human body for the food that is eaten. This can lead to malnutrition with vitamin and mineral deficiencies. In some cases, the bacteria use up enough food that there are not enough calories for the body, which leads to weight loss.

If the bacterial overgrowth is prolonged and severe then there is a chance of it interfering with the digestion and absorption of food. If this happens the deficiencies of vitamins and minerals may develop and patients may lose weight. Some patients also report symptoms such as body aches or fatigue and symptoms tend to be chronic. Patients can also experience symptoms that fluctuate greatly and it could be months, years or decades before a diagnosis is made.

Small intestinal bacterial overgrowth is usually treated with antibiotics, which have been very effective. The problem is that if the underlying cause is unclear then symptoms frequently return when the antibiotics are stopped. It has been recognised as a problem with severe disorders of intestinal muscles and intestinal obstruction. Probiotics are also used in people with SIBO.

For more information on SIBO I found these two websites very helpful: http://www.webmd.boots.com/digestive-disorders/small-intestinal-bacteria-sibo?page=5
http://www.medicinenet.com/small_intestinal_bacterial_overgrowth_sibo/page5.htm

Charlie x