“Right guys I need your help to get the word out, when I return from collecting the game at midnight on launch day I will be attempting a solo 48hr live stream on www.twitch.TV/Crosby85.
The reason I am attempting a 48 hour stream is to raise awareness of the rare condition Elhers-Danlos Syndrome (EDS). EDS is a rare genetic condition in which a gene mutation causes the connective tissue in the body to be abnormal. People with EDS have faulty collagen and collagen is the glue that holds our bodies together, so very little escapes symptoms. It is a life altering, debilitating condition and causes it’s sufferers lots of pain. There is no cure and very little treatment available and unfortunately it is a progressive condition. There is a lack of knowledge about EDS within the medical profession which means that it is misdiagnosed and overlooked. In order to raise awareness through my stream I will be sharing a fact about EDS every hour.
My girlfriend lives with this condition and has inspired me to try something out of the ordinary to raise some money for her (www.gofundme.com/CharlieHarris), for the eds UK charity (www.justgiving.com/David-Crosby4) that is set up to support people with EDS and also the invisible friends group (http://www.theinvisiblefriends.org) that my girlfriend is part off, this is a vocal/support group that has been put together to help those with “invisible illness’s” .
Last year I managed to complete a 24hr Destiny live stream but want to push myself even more this time around. Doing a 24 hour stream was hard due to having to concentrate on the game for so long without a substantial break, this means that I will need all the help I can get to complete 48 hours! I will have some friends helping me get through the 48 hours but if I can get people to watch the stream it would spur me on to get to the end. Please share this post as I need to get as many people behind me for this as I possibly can.”
Please share to help get the word out!