My Mum often tells me about a very brave young man named Daniel who also has EDS and PoTS. My Mum often talks to his Mum and she keeps me updated with how he is doing. Daniel is only 14 and has already been through some real hard times. He spends a lot of his life in hospital and is fed vital nutrition via an IV line. I have never met Daniel but I have been told about how brave he is and the challenges he has had to face and I am truly inspired by him. I know how difficult living with these awful conditions can be and especially spending so much time in the hospital so I hope that 2016 is a better year for you Daniel! Try to remain positive and keep smiling. Sending you lots of hugs!
Love & Hugs,