EDS traits!

Standard
Hand

How I hold a pen.

The "normal" way to hold a pen.
The “normal” way to hold a pen.

 One of the strange things used to try and make me hold my pencil "normal".

One of the strange things used to try and make me hold my pencil “normal”.

 My pencil case used to be full of these!

My pencil case used to be full of these!

Since I was little people have always said to me “URGH look at how you hold your pen” etc. In school I was told off by teachers and they tried to make me write like a “normal” person but I just couldn’t do it. They made me have strange shaped pens and triangle grips to try to make me hold my pens and pencils “properly” but I just couldn’t do it, it was too uncomfortable! Today I had to fill in a form and had to do some writing and I had forgotten how much pain I can be in just from writing. When I was diagnosed with Ehlers-Danlos syndrome it clicked as to why I hold my pen like I do. This got me thinking, are there any weird and wonderful things that you do which you have thought was “normal” that clicked into place when you were diagnosed? Share your story on this page or email me at invisiblezebra@hotmail.com and I will share on my blog! Hope you are having a pain free day. Peace and love, Charlie x

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