Ehlers-Danlos Syndrome in the media.


Today I came across an article in Reveal magazine about an inspiration young lady called Keeley, who I am friends with on Facebook, who also has Ehlers-Danlos syndrome.
Keeley talks about the realness of EDS and the fact that just the slightest of movements is enough to cause dislocations. I can relate to what Keeley is saying and just the other night my partner gave me hug and felt my shoulder come out of place. He was a bit freaked out as he has never felt it happen before. Also like Keeley, it was Facebook support groups that introduced me to Ehlers-Danlos syndrome and pushed me further to seek help when my local hospital couldn’t explain my illness.
Please read and share Keeley’s article to help raise awareness of Ehlers-Danlos syndrome and the impact it can have on daily life. Well done Keeley, you are an inspiration.
Charlie x


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