Day 20 – The meaning behind your blog name.


Day 20 – The meaning behind your blog name.

My blog name is Invisible Zebra and the reason for this is because I have a condition called Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome is an invisible illness, meaning from the outside I might look “normal” and like there isn’t anything physically wrong and this is where the Invisible part comes from.
The Zebra part is because we are known as medical Zebras and the below is an explanation of this, from
 “When you hear the sound of hooves, think horses, not zebras.”
This phrase is taught to medical students throughout their training.
In medicine, the term “zebra” is used in reference to a rare disease or condition.  Doctors are taught to assume that the simplest explanation is usually correct to avoid patients being misdiagnosed with rare illnesses.  Doctors learn to expect common conditions.
But many medical professionals seem to forget that “zebras” DO exist and so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions.  Ehlers-Danlos Syndrome is considered a rare condition and so EDS sufferers are known as medical zebras.  This identity has now been adopted across the world through social media to help bring our community together.
That is where my blog name came from!



Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s